{"id":2053,"date":"2025-03-09T17:15:24","date_gmt":"2025-03-09T14:15:24","guid":{"rendered":"https:\/\/www.urlahaber.net\/?p=2053"},"modified":"2025-03-09T17:15:25","modified_gmt":"2025-03-09T14:15:25","slug":"haydi-zumrayi-yasatalim","status":"publish","type":"post","link":"https:\/\/www.urlahaber.net\/index.php\/haydi-zumrayi-yasatalim\/","title":{"rendered":"Haydi! Z\u00fcmra\u2019y\u0131 ya\u015fatal\u0131m"},"content":{"rendered":"\n

T\u0131p literat\u00fcr\u00fcnde, ilerleyici ve kal\u0131tsal bir kas hastal\u0131\u011f\u0131 olarak tan\u0131mlanan \u00f6l\u00fcmc\u00fcl SMA hastal\u0131\u011f\u0131 \u0130zmirli Eren ailesin de kabusu oldu. Do\u011fdu\u011fu hastanede SMA T\u0130P 2 tan\u0131s\u0131 alan 4 ayl\u0131k Z\u00fcmra bebe\u011fin yurt d\u0131\u015f\u0131ndaki gen tedavisi i\u00e7in gerekli paray\u0131 toplayabilmek amac\u0131yla valilik izinli ba\u011f\u0131\u015f kampanyas\u0131 ba\u015flat\u0131ld\u0131.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

G\u00fcn\u00fcm\u00fczde, T\u00fcrkiye ve d\u00fcnyada bir\u00e7ok ailenin korkulu r\u00fcyas\u0131 haline d\u00f6n\u00fc\u015fen SMA hastal\u0131\u011f\u0131 hi\u00e7bir \u015feyden habersiz ya\u015fama tutunmaya \u00e7al\u0131\u015fan minik Z\u00fcmra’n\u0131n kaderi olmas\u0131n. Buca Gediz’de ikamet eden 5 ki\u015filik Eren ailesi, 13 Ekim’de d\u00fcnyaya gelen Z\u00fcmra’n\u0131n do\u011fumuyla havalara u\u00e7tu. Ailenin, sevinci bebekten al\u0131nan topuk kan\u0131n\u0131n tahlilden \u00e7\u0131kmas\u0131yla birlikte yerini moral bozuklu\u011funa b\u0131rakt\u0131. Doktorlar minik Z\u00fcmra’ya SMA T\u0130P 2 tan\u0131s\u0131 koydu. K\u0131sa s\u00fcrede toparlanan aile \u0130zmir Valili\u011fi’nden gerekli izinleri alarak k\u0131zlar\u0131n\u0131 ya\u015fatmak i\u00e7in ba\u011f\u0131\u015f kampanyas\u0131 ba\u015flatt\u0131.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Z\u00fcmra’n\u0131n SMA tan\u0131s\u0131 al\u0131ncaya kadar e\u015fi Faz\u0131l (38), \u00e7ocuklar\u0131 G\u00fclsena (15) ve Faruk (14) Eren ile mutlu bir hayat s\u00fcrd\u00fcklerini belirten anne Rabia Eren, “SMA tan\u0131s\u0131yla birlikte d\u00fcnyam\u0131z karard\u0131. Di\u011fer \u00e7ocuklar\u0131m son derece sa\u011fl\u0131kl\u0131. Minik k\u0131z\u0131m\u0131n tedavisi i\u00e7in gerekli ‘Zolgensma’ adl\u0131 gen ilac\u0131n\u0131n bedeli 1 milyon 820 bin dolar yani yakla\u015f\u0131k 66 milyon TL civar\u0131nda. Sosyal medyada, ‘@sma2024zumra’ adresi \u00fczerinden duyurdu\u011fumuz kampanyam\u0131z ba\u015flad\u0131. Hay\u0131rsever ba\u011f\u0131\u015f\u00e7\u0131lar\u0131n deste\u011fi ile Z\u00fcmra’m\u0131z\u0131 bir an \u00f6nce tedavi ettirmek istiyoruz” diye konu\u015ftu.<\/p>\n\n\n\n

\"\"<\/figure>\n","protected":false},"excerpt":{"rendered":"

T\u0131p literat\u00fcr\u00fcnde, ilerleyici ve kal\u0131tsal bir kas hastal\u0131\u011f\u0131 olarak tan\u0131mlanan \u00f6l\u00fcmc\u00fcl SMA hastal\u0131\u011f\u0131 \u0130zmirli Eren ailesin de kabusu oldu. Do\u011fdu\u011fu hastanede SMA T\u0130P 2 tan\u0131s\u0131 alan 4 ayl\u0131k Z\u00fcmra bebe\u011fin yurt d\u0131\u015f\u0131ndaki gen tedavisi i\u00e7in gerekli paray\u0131 toplayabilmek amac\u0131yla valilik izinli ba\u011f\u0131\u015f kampanyas\u0131 ba\u015flat\u0131ld\u0131. G\u00fcn\u00fcm\u00fczde, T\u00fcrkiye ve d\u00fcnyada bir\u00e7ok ailenin korkulu r\u00fcyas\u0131 haline d\u00f6n\u00fc\u015fen SMA […]<\/p>\n","protected":false},"author":7,"featured_media":2054,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,21,19],"tags":[313,315,316,314],"class_list":["post-2053","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","category-gundem","category-siyaset","tag-fazil-eren","tag-rabia-eren","tag-sila-sonmez","tag-zumra-eren"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/posts\/2053","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/comments?post=2053"}],"version-history":[{"count":1,"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/posts\/2053\/revisions"}],"predecessor-version":[{"id":2058,"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/posts\/2053\/revisions\/2058"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/media\/2054"}],"wp:attachment":[{"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/media?parent=2053"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/categories?post=2053"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.urlahaber.net\/index.php\/wp-json\/wp\/v2\/tags?post=2053"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}